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The ramblings and observations of a kidney transplant recipient, although not necessarily for that reason.

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More of YOUR questions answered....
Tuesday, November 21, 2006


Questions brought to you by people searching google and happening along my blog.
Answers brought to you by me.

"IgA nephropathy goes away in a transplanted kidney because"
IGA nephropathy is the kidney disease I've had since I was 12 and the reason for my kidney failure. Unfortunately, it doesn't ususally go away after a transplant. Most often the disease comes back and damages the transplanted kidney at the same pace it did your original kidneys. The hidden good news is that IGA Neprhopathy is usually a fairly slow moving disease and in a case like mine, it took 35 years to get to kidney failure. It wouldn't be unreasonable to expect it to take another 35 years for the transplanted kidney.

Regardless of all that, the immunosuppressive drugs you take to prevent your body from rejecting the kidney also do damage to your kidney and at a rate more aggressive than IgA Nephropathy normally would. Chances are you're going to need another transplant from the drugs before you would need another transplant from the disease. Although, the drugs are getting better and I'm currently on a study drug that is not nephrotoxic and if this drug or something like it makes it to market, the days of needing another transplant as a result of the drugs may soon be over.

"things that you shouldn't eat while on dialysis"
I was fortunate enough to time my kidney failure and transplant so that I could completely avoid dialysis, but in an effort to prolong my kidney function for the last few years, the doctor recommended I practice the same diet as people on dialysis and sent me to a nutritionist that specialized in dialysis patients.

The things you need to avoid are:
Protein (big bummer for a meat eater like me, but you can't skip it completely, unless you don't like hair or fingernails)
Phosphorus (it's in many foods but high in the following things)
Dark Colas (Coke, Pepsi, Dr. Pepper, diet or regular doesn't matter, surprisingly not root beer)
Legumes (beans)
Whole Grains (wheat, rye, etc., better to eat white bread)
Seeds and nuts
Barley & Hops (Um.....BEER!?!?!?)
Potassium (it's in lots of fruits and vegetables, they give you a chart telling you which are better than others)
Sodium (high blood pressure and poor kidney function go hand in hand and salt raises your blood pressure)
Fat (being fat raises your blood pressure too)

It often feels like you can't eat anything and it always feels like you can't eat anything good. And many parts of the diet are not efficient for weight loss/maintenance, which is usually required. Good luck, I hated the diet and did everything I could to get a transplant ASAP because of it.

"can kidney transplant recipients drink dr. pepper soda"
YES! At least I can, but please ask your doctor to be sure. Lifestyle-wise, the great thing about getting a transplant is that all diet restrictions shown above GO AWAY! Once you have a kidney properly cleaning your blood, you can eat like a normal human being. To properly maintain the immunosuppressants in your blood, it's best to limit (notice I said limit, not eliminate) salt, caffeine and alcohol because they are things that dehydrate you. That's about it on the diet restrictions, though, and doctors discourage everyone from those things.

"cpap morning fart"
A CPAP is a breathing apparatus one wears over their face while they sleep to counteract sleep apnea. Ummm.....I think you may be wearing yours over the wrong orifice.

- - - - - - - - - - - - - - - - -

Lastly, I'm honored to be listed as hit #11 of the following google search:
"famous kidney transplant recipients"
Yeah, so there's the guy in the NBA. There's the Mexican guy with the sitcom. I think Gary Coleman or the Webster kid may have gotten one. Then there's me. I think they got it right.

Also, I'm even more honored to be hit #12 of THIS google search, and don't think for one second I'm giving away my secrets.
"how to eat coochie"

I will say this, though. You're not the Tootsie Pop Owl. It's gonna take more than three licks and a crunch to get to where you're going


posted by othur-me @ 3:35 PM  
15 Comments:
  • At 5:22 PM, Blogger fringes said…

    I am completely impressed by you now more than ever. Thanks for answering your searchers' questions. I learned a lot as well.

     
  • At 5:26 PM, Blogger Liz said…

    This is almost weird. I wrote a post on Googling tonight, then I read this blog. My post was also about being Googled... or, in my case, a lack of Googlness. You'll see what I mean once you hop over to Killer Rants.

    Great minds thinking kind of alike or a slow news day?

     
  • At 8:27 PM, Blogger rawbean said…

    You really are number 12 on the google search for "how to eat coochie". That is impressive...oh yea and the kidney thing too!

     
  • At 3:20 AM, Blogger Jester said…

    Weird. I also posted a search engine related post. And another one coming tomorrow.

    Freaky.

    I am scared for the world if you are the #12 resource on coochie eating.

     
  • At 12:10 PM, Blogger Margaret said…

    can you guess how I landed on your blog?

     
  • At 12:59 PM, Blogger othur-me said…

    fringes - I couldn't find anything buy clinical information on the internet before I had my transplant. I want to make sure there are people facing kidney transplants that get the real human stuff about it. I was more scared than I should've been DESPITE the fact I know two people who've had kidney transplants AND I LIVE WITH ONE! Their stories are nightmares, though.

    Liz - It's ok to admit it. I mean I'm willing to. Great minds DO think alike.

    Rawbean - It's way better than knowing all this clinical stuff about coochies and me being #12 on the list of "how to eat kidneys".

    Jester - if not for the fact that you just insulted me, I would have included you in the "Great Minds Think Alike" campaign that Liz and I are on.

    I think it was Dostoyevsky who wrote, in his book The Gambler (1867), "Это - самый измученный жаждой человек, который будет потягивать его воду со страстью одной тысячи языков.", which loosely translates to "It is the thirstiest man that will sip his water with the passion of 1000 tongues."

    Margaret - I always though you linked here through Killer's blog, but further investigation reveals you came here first and commented on the "Caption Contest" with the dreadlock guy and right after Killer commented "I haven't faced this many questions about my sexuality since my mom caught me reading hemaphrodite porn." My guess will be that you were searching for hermaphrodite porn. AM I RIGHT? AM I RIGHT?? Please tell us the real answer.

     
  • At 1:01 PM, Blogger othur-me said…

    Those were supposed to be russian characters, but apparently blogger doesn't recognize them. It doesn't matter anyway. Dostoyevsky didn't say any such thing that I know of. I DID! It would have had less impact though without a reliable literary figure to mis-credit.

     
  • At 3:41 PM, Blogger Jester said…

    Well you have to admit, it IS a bit scary. :)

    And weird that it goes perfectly with the conversation we were having over last night's dinner.

     
  • At 6:33 PM, Blogger Killer said…

    Why are you not writing more about eating coochies? I would fully expect a person ranked number 12 out of the whole world to atleast offer up some tips. It's not always about your kidney you know.

     
  • At 6:55 PM, Blogger othur-me said…

    Jester - it would be stranger if you were ranked #12.

    Killer - Tip #1, don't forget to breathe.

     
  • At 7:56 PM, Blogger EEK said…

    I'm impressed with all of the various rankings. Though, I do have to admit that the 'coochie' one is ridiculously impressive.

     
  • At 10:47 PM, Blogger Jester said…

    I don't know about that, I've had some experience in that arena, and certainly received no complaints. :)

     
  • At 8:56 AM, Blogger The Other Girl said…

    Filth.

     
  • At 8:26 PM, Blogger Red said…

    Next entry better be about how to eat coochie. I'll bring my red pen.

     
  • At 1:15 AM, Blogger othur-me said…

    jester - doing it one time with a girl when you were pretending to be straight and not knowing when to stop because nothing "shot out" is different than performing until she can't see straight on purpose.

    other girl - no one has every found my blog by searching "coochie filth" but this may increase the chance.

    red - I hope you're not as tough a grader as my sixth grade teacher, Miss Pennywhistle.

     
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